Friday, July 15, 2011

Thank you Harry

Dear Harry Potter,


   I want to say thank you! Thank you for the years of friendship,memories, and all the fun times together. You have truly been a great friend to me. I remember when we met, we were both about the same age, and trying to figure out who we are and where to be. We had so many questions and not enough answers. When we met I felt an instant connection with you. I knew we would be instant friends. 
 We've come a long way in all these years. You've taught me so much, much more than anyone else could have ever done, and you've always been there for me. You've been there for all of us. When I say us I mean everyone who has ever met you. I know you've touch a lot of people, and have always been there for everyone, and I know we have always been there for you. We were also there for Ron, Hermione, Neville, and everyone else. We are truly a family. Even though your stories have ended, our friendship will never end. I know I will always be there for you, and you always for me. 
 Again thank you for all the wonderful times we've had together, and for being one of the best friends I've ever had
Forever friends,
Alexandra 

Sunday, May 29, 2011

how does nf1 affect you?

the way nf effects me is i am blind in my right eye to an optic nerve glioma. i also have some cafe-au-lait spots and some neurofibromas which are bumps on the skin. i also had learning disablilities throught school. that is mainly how its effeced me. but it effects each idividual differently. you can learn more about nf at ctf.org i am in the process of writing a book about mine and my families story thourhg life,nf, and such. im not gonna say keep an eye out for it soon, cause im no where near finished but will post around when its ready. :D

Ask me Something.....please

Tuesday, April 5, 2011

Days like this

you know how somedays you just love, others you hate, and some you're just not sure, well this was a great wonderful day today. let me tell you a little about it. so it started out as a kind of a bad day.....well at least for mom found out her internet card is out or something. :( we call the tech lines and they sorta give us a solution.we get ready to leave cause i needed to do some job hunting, and go to the library. we start walking and im going around into places asking if anyones hiring or taking apps no one is. i also take about the first 20 minutes or so and go barefoot for TOMS shoes for the no shoes day, well its ohio so its freezing and mom doesnt want me catching a cold, and frankly i dont either. also people say its illegal to go places barefoot, well whoever said that is wrong, i looked it up it is perfectly legal to walk and go places barefoot even in restraunts. but i put my shoes on and we walk to find more apps, no ones taking any or i have to apply online, one place i did leave my name and email, but it forgot the phone number to our house since i havent memorized it yet, so i wrote down my email. once outside some dude comes up to us and asks us if we do drugs. lol uhh no it was funny and awkward. we continue on and go to the library. stay there for a while i get some books and movies. and we leave walk around a little and decide to go to walmart. we almost wernt gonna go but we decided to, and its a good thing too. we shopped a little, went to the dollar store and its about games, got a sub at subway and went to wait for the bus home. well while waiting we met Mike Tyson.

 No no not THE Mike Tyson, Mike and Tyson, father and son. Tyson, Mikes son is blind and Mike said he needed to be somewhere by 7 time was close but he said he'd make it, but was wondering if we could take Tyson to coney island to wait, we did and he got us a snack.. lol i typed snake at first. we then siad goodbye and see ya soon, and walked home.

what a day. it was awesome. oh and the whole day we gave ourselves nicknames. it started when moms chair fell out of the house and it started snowing, she was like huston we have a problem. i was like oh no major tom what is it. so thats what it became. well i added ground control to mine but mom was major tom, i was houston/ground control. a little david bowie anyone?

i am tired now and gonna relax watch a movie and read some since i have 3 books which are 14 day books, hopefully i can renew them cause not quite sure if im gonna finish them or not  ill find out.
tell me what you think about this awesome day!

 - alex

Friday, March 11, 2011

change the world

so you want to change to the world? good choice! what are you going to do about it? how are you going to start?................how about now! 

there's so much destruction, and devastation in the world nowadays. tsunami's,earthquakes,shootings, hurricanes, and more. how can we help more? i want to know. if i could i would love to go and help, but i don't know how to get involved in a mission group that goes and helps those people. and not just those in the most recent incidents, but those effected by aids and other diseases. i know of organizations such as love146,  invisible children, faceless international, and more. but from what i know they cost money to go with them and help. i've been thinking of writing them and telling them how much i want to help but don't have the funds to pay for my part to help, and see what they say. 
 
i want to make such a difference in this world, and all i have to do is take action. that's all anyone has to do is take action to change or do something. think of what martin luther king did, he was  one man, and he helped form a movement that changed the world. if i lived at the time he was around and doing his speech i can tell you i would be on his side fighting for there freedoms! 

but even today.........

 our freedoms are even being taken away. We can barely walk down the street without getting criticized or being told not to do something. We're being told what to eat and when to eat it. And don't forget what to wear. i hate the shows like 'what not to wear' they tell you to drop all your old clothes and wear what they think. oh so just because I wear blue jeans and a t-shirt i dress poorly? 

also when organizations have days where you support something by doing a simple action such as being silent all day for being pro-life, or to support those effected by suicide, depression and addiction. and even going barefoot for those without shoes. last year i was silent for being pro-life and i got stares and looks and people were talking. all i did was go to a book store and another store and even with paper and pen in hand, and red duct tape with the word life written on it, they still didn't understand. i wrote what i wanted to say and handed out flyers and still wondered. i did take the tape off and explain myself but they still seemed disappointed. where they pro-choice or something? but its all being taken away, we cannot be silent i was told not to hand out flyers, and such. when i do the barefoot day for those who don't have shoes its april 5th i know ill have to carry shoes with me cause with walking some places will say i cannot enter due to i am not wearing shoes. all are rights are disappearing. so where is this freedom i keep hearing about. where do i get some i really wanna know. 


i wish people would open there eyes and ears and see more than what we do, i am getting better at that and am trying to take action more than i do, i have the love146 site open now and am going to see what i can do to take action, if there is someone i can write ill do it. im not saying thats what you need to do, but just think next time. 

and dont get me started on obama, he's probably sitting in his office thinking im so big and powerful and rich hahah. and not doing much about it. sorry if im wrong but thats me, i dont like obama and i dont think hes going to do much about it. no president seems/ seemed to do anything about any disaster. 

lets all do better on taking action and doing something to change everything in the entire world for the better.

- alex

Monday, March 7, 2011

Friday, February 4, 2011

Angels and Demons ( NOT referring to Dan Browns novel)

Today we were able to get to the store, most of you know were in the middle of nowhere and not able to get into town very often. Today we were able to, we went to the places we needed, here and there, and then at our last stop Wal-Mart and we had started having out things rang up. Mom told my and my brother we might not be able to get the last few things, they weren't necessities , the lady behind us handed my mom $20 saying we shouldn't have to go without.
 My mom thanked her and payed and wanted to start to cry, i think she did a little, i was loading the cart with everything so at first i didn't know what happen, but she told me and i was touched. it truly inspired me, and yes there are angels among us. They may not have wings,fly,glow, or anything else, but there normal people. Thank you!

i know there are some bad people out there,demons as they may seem i just read about some in some books i borrowed from a friend, heck i couldnt even finish the books, i can watch the documentaries on tv, and watch horror movies, as well as read the books,but these i for some reason found myself only skimming them, and how can i read books on children who are abused and stuff,and am able to read them a lot, i think it cause i know there is HOPE and the end, and GOOD comes out of it. They are SAVED, and taken to good homes.
Another good thing is, sometimes the people who scare us, or look bad, have a good side to them, i have read and seen so much on this, the people who scare us could end up saving us in a bad situation.

I hope you take time to think about this post, and to thank those angels around us!

Alex